No Longer Afraid Of Epilepsy
For most of Paul Ramirez's life, only those closest to him knew that he lived with a serious brain disorder.
Ramirez, of Pasadena, California, found out he had epilepsy when he was 22. Now 50, he's had seven grand mal seizures, which make him lose consciousness. Still, he often went years without having a seizure at all.
"I kept it private from extended members of my family. I never told my friends. I was ashamed of it," Ramirez said.
That changed in June. Ramirez was waiting to see his neurologist after a recent seizure. The doctor would help determine whether Ramirez should continue driving.
In the waiting room, Ramirez stumbled across a CNN.com story on his iPad. The story, published after U.S. Commerce Secretary John Bryson had a seizure while driving, explained how common seizures are and the reasons they can occur. It featured people living with epilepsy who talked about the impact the disorder had on their lives.
Reading the piece marked a turning point in Ramirez's life.
"It was the first time I had ever read a story that actually mirrored my own life," he said. "It was inspiring. It was encouraging. It gave me hope that there were others out there (like me)."
Ramirez immediately sent an e-mail to Nathan Jones, who was featured in the story. By the time the doctor appointment was over, Jones had responded. Ramirez and Jones, project coordinator at the Epilepsy Foundation of Greater Los Angeles, soon became fast friends, sharing stories over coffee and lunch.
A week later, Ramirez went to the foundation's office and met with the staff. He wrote an e-mail to his family and friends, telling them about his journey and his struggles with epilepsy. He also told them the Department of Motor Vehicles was looking into whether he should keep his license.
He was overwhelmed with support.
"I now feel like a weight has been lifted off my shoulders," he said. "I'm not afraid to come forward, to discuss it."
Ramirez realized that he had an opportunity to share his story and to help others. He signed up to become a team captain for the foundation's Walk to End Epilepsy on October 28 at the Rose Bowl.
Then he decided to do more.
Last month, days before his 50th birthday, Ramirez climbed Mt. Whitney, the highest point in the contiguous United States, in one 15-hour hike. He dedicated that hike and his birthday to raising money for the walk.
When he reached the summit, Ramirez put on a shirt with two simple words: End Epilepsy.
"Standing on that mountain and being able to put on the End Epilepsy shirt meant more to me than any footstep I took getting up there," Ramirez said. "It meant a lot. And I'll do it again next year and the year after that."
Susan Pietsch-Escueta, executive director of the Epilepsy Foundation of Greater Los Angeles, says more people with epilepsy need to come forward. She says that sharing stories and information is vital to helping people understand the world's most common serious brain disorder.
"I think that's why it's so amazing to have people like Paul willing to speak up and be an example," she said. "I truly do believe we will never end epilepsy if people with epilepsy remain in the shadows and in hiding, in a sense."
Ramirez takes precautions but says he is not going to let epilepsy manage his life. He's been cleared to drive; he's an expert skier and an avid mountain biker and swimmer.
"He's not going to let anything hold him back," Jones said. "He's going to live his life like he wants to, and I really admire that."
Ramirez says the CNN story came at the perfect time in his life.
"I'm not embarrassed anymore. I just don't see it as a humiliating circumstance. It's just another part of life," he said. "I think everyone has something, and this is my something."
Latest Blog

Mystery of anteater that gave birth after living alone in Connecticut zoo cage for YEAR AND A HALF
By Daily Mail Reporter PUBLISHED: 11:17 EST, 17 May 2013 | UPDATED: 06:27 EST, 18 May 2013 Was it immaculate anteater conception?A female anteater has unexpectedly given birth at a Connecticut conservation center after her mate was separated more than half a year prior, causing officials there to wonder how the mother conceived.Officials at the LEO Zoological Conservation Center told the Greenwich Time they had...0 comments

Britain's oldest shop which first opened for business during the reign of Henry V could finally close after 600 years
Boxford Stores in Suffolk under threat after 94-year-old owner diesIt has been at the centre of the little village for centuriesHistorians discovered it was first used as a warehouse in 1420Over time it has been a butchers, greengrocers, ironmongers and drapersSub-postmaster Richard Gates, 68, says it's vital shop stays openIn extraordinary coincidence, village is also home to country's oldest garage...0 comments

Justin Bieber ordered to pay thousands towards the care of abandoned pet Mally the capuchin monkey
Mally the capuchin monkey was held by customs officials in MunichBieber did not have the correct paperwork for Mally, a 19th birthday present By Helen Lawson PUBLISHED: 11:08 EST, 17 May 2013 | UPDATED: 06:25 EST, 18 May 2013 Justin Bieber has been hit with a bill for thousands of dollars by the German animal shelter where his confiscated pet monkey has been held for...0 comments

Brian Kent: British tourist, 46, drowns in rough seas in front of his wife during family holiday in Italy
Brian Kent, 46, was on holiday with his wife Sally and a party of friendsHe was dragged under by strong currents moments after entering seaThe group are due back in Britain today and his body will be repatriated By Nick Pisa PUBLISHED: 05:54 EST, 18 May 2013 | UPDATED: 06:02 EST, 18 May 2013 A British holidaymaker has drowned in rough seas in front of...0 comments

Average English child says ¿like¿ five times more than their grandparents as 20 year language study finds standards are also slipping at the House of Commons
The research is part of the Cambridge English Corpus - one of the biggest collections of words in the English language Over 20 years, it has formed a database which shows a decline in the correct use of grammar By Tara Brady PUBLISHED: 06:21 EST, 18 May 2013 | UPDATED: 06:36 EST, 18 May 2013 A new study from Cambridge University reveals language is becoming...0 comments

Dambusters anniversary: Chris Evans given trip in Britain's only airworthy Lancaster
Presenter boasted of trip in historic aircraft, saying 'I can't believe I am getting paid to have this much fun'Commemorated the day 617 Squadron returned from Dambusters RaidRadio DJ flew from RAF Scampton, former home of the Dambusters to Biggin Hill airfield in LondonSaid he was 'honoured' to sit in Squadron Commander Guy Gibson's chair By Sara Smyth PUBLISHED: 15:33 EST, 17...0 comments

Fourth Coronation Street star accused of being a paedophile
Unnamed star was 'household name' but no longer appears on showAccused of 'very inappropriate' behaviour towards girl in the 1960sFriend of victim, who is in her 50s, said she remains traumatised By Rosie Taylor PUBLISHED: 04:24 EST, 18 May 2013 | UPDATED: 06:10 EST, 18 May 2013 A fourth Coronation Street star faces police questioning after being accused of preying on a 12-year-old girl.The actor...0 comments

Dogs of war: The four-legged army recruits who detect hidden Taliban bombs and weapons
Eight puppies have become the latest recruits on the Ministry of Defence's new 'Puppy Programme'Next year they will be among an elite Army team sniffing out roadside bombs in Afghanistan By Ian Drury PUBLISHED: 03:22 EST, 18 May 2013 | UPDATED: 06:09 EST, 18 May 2013 Boisterous, mischievous and reluctant to heed their commanders, these young cadets hardly resemble a crack military unit.One chases...0 comments

Civil servants to be told: 'Empty bedpans, push hospital trolleys and clean floors if you want to be promoted'
Top 200 mandarins in Department of Health must carry out frontline tasksThey will be required to do four weeks a year for six years to be promotedScheme will soon be rolled out to the department's 2,000 civil servants By Helen Lawson PUBLISHED: 05:49 EST, 18 May 2013 | UPDATED: 06:06 EST, 18 May 2013 Health Secretary Jeremy Hunt will announce the scheme on MondaySenior...0 comments

Dan Dare: Car-repair manual publisher releases nuts and bolts guide to space hero's galactic journey
A new manual revales technology behind comic book hero's space craftHaynes Publishing is famous for its car repair manualsNew tome focuses on Dan Dare's personal spaceship the AnastasiaLantern-jawed pilot inspired legions of schoolboys in the 1950s By Ray Massey PUBLISHED: 05:50 EST, 18 May 2013 | UPDATED: 05:57 EST, 18 May 2013 Forget Captain Kirk and his Starship Enterprise. Buzz-off Buzz Lightyear. And Star Wars...0 comments

'Caleb Batman': North Carolina boy, 5, steers his mom's car out of danger when she suffered a seizure
By Jessica Montoya Coggins PUBLISHED: 22:59 EST, 17 May 2013 | UPDATED: 05:56 EST, 18 May 2013 With Christian Bale saying his superhero days are behind him, perhaps a young boy from North Carolina can take over the role of caped crusader? Caleb Taylor found himself in a scary situation earlier this week when his mother Sandra suffered a seizure while driving, but instead of...0 comments

Cabinet ministers tell George Osborne we can only cut £2.5bn
Chancellor must find an extra £11.5billion in cuts for 2015-16Unprotected departments told to find up to 10% reductionsBut some angry ministers are defying Treasury to resist big cuts By Jason Groves PUBLISHED: 08:43 EST, 17 May 2013 | UPDATED: 05:55 EST, 18 May 2013 George Osborne needs to cut £11.5billion for 2015-16 George Osborne is facing a Cabinet backlash over spending cuts, with ministers refusing...0 comments

Valuables stolen on holiday? Don't rely on travel insurance as experts warn most policies are USELESS
Host of companies impose unrealistic caps on payouts for theft of valuablesFigure won't cover expensive items such as smartphones or jewelryValue also wiped out by excess charges By Sean Poulter PUBLISHED: 18:31 EST, 17 May 2013 | UPDATED: 05:54 EST, 18 May 2013 Rip off: Many travel insurance policies have unrealistic caps on payouts which make them effectively useless Many travel insurance policies are effectively...0 comments

David Beckham will play his last game TONIGHT instead of next week as England legend retires from football
Star says farewell in specially designed patriotic red white and blue boots with the names of his children and the initials of his wife Victoria By Matt Lawless PUBLISHED: 02:52 EST, 18 May 2013 | UPDATED: 05:54 EST, 18 May 2013 Soccer superstar David Beckham will retire TONIGHT after playing his last game for Paris Saint-German - in a patriotic pair of boots.He was due...0 comments

Champagne, strippers and just how shockingly easy it is for City sharks to pump up our petrol prices: A former city broker reveals secrets of hard-partying oil traders
Oil traders see themselves as an 'elevated breed' among City workersOil price reporting system - Platts - is 'vulnerable to abuse'Rumours of strange price fixing data for some time By Geraint Anderson PUBLISHED: 16:12 EST, 17 May 2013 | UPDATED: 05:54 EST, 18 May 2013 Every major investment bank’s trading floor has a number of different ‘tribes’. There are the barrow-boy bond traders and...0 comments

'Crazy Ants' which damage electrical systems are taking over southeastern United States
By Jessica Montoya Coggins PUBLISHED: 22:01 EST, 17 May 2013 | UPDATED: 05:53 EST, 18 May 2013 You certainly wouldn't want these ants in your pants. A species of ants, nicknamed 'crazy' by researchers because they are prone to sporadic movements has descended upon the Southeastern region of the country, particularly in coastal areas with warmer temperatures and has wreaked havoc on yards and homes....0 comments
Comment on: No Longer Afraid Of Epilepsy
Rate this article
CURRENT ON CAPITALBAY
Displaying
1 - 10
Displaying
1 - 10
Breaking News
Mystery of anteater that gave birth after living alone in Connecticut zoo cage for YEAR AND A HALF
By Daily Mail Reporter PUBLISHED: 11:17 EST, 17 May 2013 | UPDATED: 06:27 EST, 18 May 2013 Was it immaculate anteater conception?A female anteater has unexpectedly given birth at a ...
Britain's oldest shop which first opened for business during the reign of Henry V could finally close after 600 years
Boxford Stores in Suffolk under threat after 94-year-old owner diesIt has been at the centre of the little village for centuriesHistorians discovered it was first ...
Justin Bieber ordered to pay thousands towards the care of abandoned pet Mally the capuchin monkey
Mally the capuchin monkey was held by customs officials in MunichBieber did not have the correct paperwork for Mally, a 19th birthday present By Helen ...
Brian Kent: British tourist, 46, drowns in rough seas in front of his wife during family holiday in Italy
Brian Kent, 46, was on holiday with his wife Sally and a party of friendsHe was dragged under by strong currents moments after entering seaThe ...
Average English child says ¿like¿ five times more than their grandparents as 20 year language study finds standards are also slipping at the House of Commons
The research is part of the Cambridge English Corpus - one of the biggest collections of words in the English language Over 20 years, it ...
Dambusters anniversary: Chris Evans given trip in Britain's only airworthy Lancaster
Presenter boasted of trip in historic aircraft, saying 'I can't believe I am getting paid to have this much fun'Commemorated the day 617 Squadron returned ...
N. Korea fires 3 short-range guided missiles into its eastern waters, South reports
TOKYO — North Korea on Saturday launched three short-range guided missiles of its eastern coast, South Korea’s Ministry of National Defense said, a test ...
Fourth Coronation Street star accused of being a paedophile
Unnamed star was 'household name' but no longer appears on showAccused of 'very inappropriate' behaviour towards girl in the 1960sFriend of victim, who is in ...
Dogs of war: The four-legged army recruits who detect hidden Taliban bombs and weapons
Eight puppies have become the latest recruits on the Ministry of Defence's new 'Puppy Programme'Next year they will be among an elite Army team sniffing ...
Civil servants to be told: 'Empty bedpans, push hospital trolleys and clean floors if you want to be promoted'
Top 200 mandarins in Department of Health must carry out frontline tasksThey will be required to do four weeks a year for six years to ...
MOST POPULAR ON CAPITALBAY
Displaying
1 - 5
Displaying
1 - 5
Featured Articles
USA States
This is a list of the United States and its Territories in alphabetical order:United States Links
View Many useful US Links:





